Let me tell you this, HS attacks the unfortunate patients physically and psychologically. The pain resulting from the abscess breakage is far beyond word but the psychological pain is the ultimate doom, is something that we cannot bare. Lost of self-esteem is like a hobby to us but some of us happened to think of attempting suicide. Why? It is not curable and every single person around us happen to be not so supportive due to the rarity of this case.
So how can we turn this situation so that we can have a bit better life? I think every hospital must have a support group or department (covering all the known uncommon diseases) linked with other hospital so the patient can talk pretty much of everything to other patient who understands what he/she is going through. By this, we can comfort and support each other. We can share information regarding medication, natural remedies, or surgery in order to fight this disease. Ultimately, this group can give us HOPE even though hope is only a myth.
After a few months of treatment, i know no one who are facing the same issue. I hope i can find my Hidradenitis Suppurativa buddy someday.
ps: pity party doesnt make me feel any better.
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